tag:blogger.com,1999:blog-7326725956609171637.post6412144719853113186..comments2024-03-01T00:43:24.860-08:00Comments on sick girl speaks!: I'm Fine, How Dare You Say I'm FineTiffanyhttp://www.blogger.com/profile/01295361245286822597noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7326725956609171637.post-35776489435684138802009-01-21T12:30:00.000-08:002009-01-21T12:30:00.000-08:00I'm new to CF. Not as in I hve CF, but I'm new to ...I'm new to CF. Not as in I hve CF, but I'm new to the world of CF (you see I met this totally amazing woman that has brought me to the world of CF through her blog....) <BR/><BR/>I wanted to thank you for writing this. I have EBS and my mother was wheelchair bound. We both struggled with explaining this world to others. They either saw us as too sick to know because we might die on them at any moment, or not sick enough and therefore milking our illnesses. It was never a winning situation. So I really like how you phrase my mom and I's struggle. i also like how you help me see CF differently than i may be currently seeing it.<BR/><BR/>Thanks again.Seanhttps://www.blogger.com/profile/13292899042660818758noreply@blogger.comtag:blogger.com,1999:blog-7326725956609171637.post-35602127331684570482009-01-19T15:26:00.000-08:002009-01-19T15:26:00.000-08:00I'm so glad to see this post has resonated with yo...I'm so glad to see this post has resonated with you all. <BR/><BR/>Judy, it's always great to know we are not alone, isn't it?<BR/><BR/>DP, thanks for the effort it took to respond to this sensitive subject. I'm honored.<BR/><BR/>Cindy, feel free to post this on your blog. Just for the record, I wasn't writing about a recent Cystic-L conversation. I have seen this dynamic for years and not just on Cystic-L. I have been meaning to write about it for a long time! :)<BR/><BR/>With Gratitude for your readership!<BR/>TiffTiffanyhttps://www.blogger.com/profile/01295361245286822597noreply@blogger.comtag:blogger.com,1999:blog-7326725956609171637.post-40750688420063219472009-01-19T13:48:00.000-08:002009-01-19T13:48:00.000-08:00Do you mind if I link to this post on my blog? Thi...Do you mind if I link to this post on my blog? This is a phenomenon that I have seen in myself quite a lot. I want people to see me as strong, as an interesting individual outside of illness - but I also want them to understand and not judge harshly when I sleep a lot, or spend days on the couch, and so forth.<BR/><BR/>(By the way, as a Cystic-L member I am guessing that this probably stems from recent discussions on the list. If so, I'm impressed by how much positive you took out of such a negative discussion!)cindy baldwinhttps://www.blogger.com/profile/01173344689280406987noreply@blogger.comtag:blogger.com,1999:blog-7326725956609171637.post-1137910347854180282009-01-17T12:37:00.000-08:002009-01-17T12:37:00.000-08:00Oh... should have said... I have CF also. I am 39...Oh... should have said... I have CF also. I am 39.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7326725956609171637.post-65416956411616143332009-01-17T12:35:00.000-08:002009-01-17T12:35:00.000-08:00I have tried three times now to leave a comment on...I have tried three times now to leave a comment on this post... and have deleted each attempt because this topic is so difficult to describe... I spend so much energy portraying a healthy person... because I am often very healthy... and can resent anyone reminding me that I am "sick". However I also struggle with needing people to remember that I DO have limitations because I am "sick"... Your post described this SO succinctly... I love your blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7326725956609171637.post-50549426510496371582009-01-15T17:26:00.000-08:002009-01-15T17:26:00.000-08:00What you say is so true. While my illness is not n...What you say is so true. While my illness is not near as serious as yours (I have Crohn's) and it's pretty well controlled now, I can relate to what you say. During my worst years, I was sick most of the time but hated to have people see it, at the same time I wanted them to KNOW that I was sick. I don't know why that was.<BR/>Now that I have two children and a husband with Cushing's disease, I notice that they seldom want to admit to anyone but me that they are having a bad day.<BR/>I think maybe we can only be defined by the moment because the tide can change at any time.<BR/>I love your blog. Good job.judycolbyhttps://www.blogger.com/profile/03178633666261662585noreply@blogger.com